Learning your child is sick is devastating, in any language.
“He got sick when he was two years old,” Miguel Morales’ mother, Maria Martinez, said in Spanish. “His diagnosis was spelled LCH. It is one of the somewhat aggressive cancers. It was a very, very difficult process for him. Very painful for all of us to see my son suffer every day without being able to understand why he does not speak much.”
LCH, or Langerhans cell histiocytosis, is a rare form of cancer that most commonly appears in toddlers and children.
Complicating the diagnosis — the fact that English is a second language for Miguel, his mother Maria and their family.
“We take care of our patients that have are limited English speakers,” said Tania Elguezabal Christensen, Interpreter Services manager at ECU Health. “So we help them to navigate our health care system and we help them communicate with our providers, with our doctors and nurses about their health care.”
Tania and the Language Access Services team — which is comprised of interpreters and translators — help bridge an important gap for patients and families during a hospital stay. An integral part of a patient’s care team, they offer services for 240 languages and dialects across the ECU Health system.
“When we go to get medical treatment, we all want to understand what our diagnosis is and what the treatments are,” Elguezabal Christensen said. “When people don’t speak the language, it’s hard to understand all of that. That’s why it’s so important for us to be a conduit between patients and providers.”
Martinez said she was grateful for the assistance the Language Access Services team provided while her family navigated a challenging time.
“It was a very good thing for me,” Martinez said. “They have been very supportive during this long process with my son. They have helped me to better understand his situation, how to properly give the medications, and to clarify many doubts that I had with the doctors. Since I do not speak the language, they have been a very important source of support for me.”
One part of the journey that is easy to understand in any language, the milestone moment Miguel got to ring the bell at the James and Connie Maynard Children’s Hospital at ECU Health Medical Center. It’s a celebration of beating cancer, surrounded by the many teams who helped him along the way.
“For me it meant life, it meant opportunity, it meant opportunity to have my son with me,” Martinez said. “It meant everything. It meant that some of my worries about losing him were fading away. It meant that I could see him grow.”
Today, Miguel is a happy, typical 4-year-old boy. He loves to play and jump around, which was difficult for him to do while he was sick.
Martinez is grateful for the outcome — and for those who made it possible.
“Well, I thank everything, first to God and for giving us the opportunity to heal my son, to the entire doctor’s team, from interpreters, nurses, doctors, everyone who was there, the whole team because they really helped us a lot,” Martinez said.
Along with sharing her appreciation for her healthy son, Martinez also wants other parents to learn from her family’s experience.
“More what I would like to say is just my experience as a mother,” Martinez said. “I would tell people that are out there listening to me and mothers out there — ask questions. If someone tells you this is just an infection, keep digging and keep asking questions.”