An unprecedented illness that started with stomach pain and spiraled into multi-system organ failure proved to be a defining experience in Kayla Jordan’s young life. Looking back, 14 years later, the now 20-year-old Jordan said it also shows how team members at James and Connie Maynard Children’s Hospital at ECU Health Medical Center gave a scared little girl in an extended stay hope, support and the chance to just be a kid.
In 2012, Kayla, then six years old, was taken to her pediatrician in Beaufort County for vomiting and stomach pain. She and her mother, Rebecca Williamson, were directed to the emergency department across the street where tests revealed that Kayla had an inflamed pancreas. As her condition rapidly deteriorated, an EastCare team transported her to ECU Health Medical Center for advanced treatment.
“I was going downhill pretty fast. They put tubes in my nose that night and then sent me to Greenville,” Kayla said. “From there on out, I was pretty sick for about a month.”
In Greenville, a care team told Rebecca that her daughter had necrotizing pancreatitis, where severe inflammation can kill tissue in a person’s pancreas. They said 50 percent of the tissue in Kayla’s pancreas was already dead. Soon after, Kayla’s organs began to shut down. She was placed in a medically induced coma because her pain was so unbearable. Her family had a chance to say goodbye, just in case, before she went under.
Rebecca, an assistant nurse manager at ECU Health, was shaken. Her instincts as a mother overrode her education as a nurse.
“It’s funny, you can be a health care professional and your kid or your loved one or someone you’re close to gets sick and suddenly, it feels like you know a lot about nothing,” Rebecca said.
Pediatric physicians worked tirelessly to determine how a 6-year-old could possibly contract a condition typically seen in older adults with a history of alcohol use. They consulted with infectious disease doctors at the hospital and on the other side of the country, performed genetic testing and ran an array of viral tests to determine the best course of treatment. It took time, but tests determined that Kayla had contracted mycoplasma pneumoniae, the bacteria that causes walking pneumonia. The bacteria had completely bypassed Kayla’s lungs and instead attacked her pancreas.
Andy Williamson, Kayla’s stepfather and an ECU Health nurse practitioner, said the diagnosis was unprecedented.
“That is unheard of, but once they identified the bug, they could treat it,” Andy said. “As soon as we got the right antibiotics on top of it, you could start seeing Kayla improve.”
The medicine worked and, astonishingly, Kayla did not require surgery. She soon began her month-long road to recovery at Maynard Children’s Hospital, where in addition to her medical care, she participated in pet therapy, received tutoring and schoolwork to prevent her from falling behind in her classes, and progressed through physical therapy to recover her strength. Friends from school wrote her cards, and her teachers even came to read to her.
“I remember we celebrated the day that she made it all the way down to the little playroom,” Rebecca said. “She borrowed my husband’s credit card so she could play shop. There were so many things to help her feel like a kid.”
For her mom, the patient- and family-centered model of care was apparent. She also felt valued as a team member.
“They provided everything that my kid needed, not just for her health but for her mental state,” Rebecca said. “There were coloring books and crayons, playrooms and a pool and pet therapy.”
Rebecca’s ECU Health team also supported her during Kayla’s hospital stay.
“My nurse manager would come to check on me and ask if I needed anything,” said Rebecca. “They helped submit paperwork to get me started on my leave of absence. It was nice. I didn’t have to worry about my job and could worry about my child. I was treated like I was a family member of the hospital.”
Kayla celebrated her 20th birthday in February. She is now a rising senior at East Carolina University, where she helps broadcast Pirates athletics on ESPN+ and plans to pursue a career in sports broadcasting. She said she was a “frequent flyer” for many years at the emergency department as she dealt with stomach issues. She also recently had her gallbladder removed, a result of the pancreatitis she fought more than a decade ago.
“She’s so resilient,” Andy said. “Not many 18-year-olds get their gallbladders out. She continues to do so well, does well in school. She’s a very smart girl and she’ll do well. We’ll be there for her, like we always have been.”
For Kayla, it’s comforting to know that ECU Health team members are there to support her, whether that’s at home or elsewhere.
“Every time I’ve had to go to the emergency department or something like that, they were always very thorough with me, and they always took my past into consideration,” Kayla said. “There has been peace of mind for me and my mom, who always went with me. It always felt like a family environment.
“As a little girl, you don’t really understand what’s happening,” she continued. “Everyone still went above and beyond to make me feel like I was a normal kid. Looking back now, it shows that, for one, medicine is awesome, and secondly that having people who are right there with you the whole time makes a huge difference.”